Hearing Loss and Self Advocacy

Self advocacy is taking responsibility for your own communication needs as a person with hearing loss by…

  • becoming self-aware and knowledgeable about your hearing loss and needs.
  • familiarizing yourself with the tools, technology, and accommodations available to you.
  • developing an ability to describe your needs to others.
  • learning the how, who, and when to ask for assistance.
It is never too early, or too late, to become a good self advocate.
Communication Practices

Hearing Loss: Family and Communication

Family and communication can be tough when you have a communication barrier like hearing loss. There are so many misconceptions and misunderstandings around hearing loss and hearing devices. If we aren’t around others with hearing loss, we may not have all the information we need. That impacts our relationships. 

Hard of Hearing Defined

Defining the Hard of Hearing

Defining our needs as a community of Hard of Hearing (HoH) people who use spoken and written language to communicate is a challenge due to the diversity of hearing loss.

As an individual, defining your own specific needs, depending where fall on the hearing loss spectrum, is one of the most important things you will do. The earlier it happens, the better.

Respect for the Deaf Community

The Deaf Community is well-respected and admired for their accomplishments, and rightly so. They have fought long and hard for recognition of their language and culture. Deaf people influenced the passage of the ADA (Americans with Disabilities Act). Their culture, community, and communication needs are visible and well-known. For that reason, anyone with hearing loss is commonly lumped together with the Deaf, labeled as hearing impaired or people with hearing loss (pwhl), and assumed to communicate fluently in sign language.


Hearing Loss: You Don’t Know What You Don’t Know

We don’t know what we don’t know with hearing loss, until we do. Ignorance is not bliss and when we do find much needed information, we wonder why we hadn’t be told before.

Once diagnosed, the Hard of Hearing are desperate for a map to help them navigate the pitfalls and gaps that lie between what they don’t know that they don’t know and information that allows them to function in life. As patients and family members, they look to those who they assume can guide them and fill in the gaps—hearing healthcare professionals.


Finding Your Hearing Loss Tribe

Finding your hearing loss tribe is uplifting. As we walk the beaten path of hearing loss (it’s one in five people), those ahead on the path help lighten the journey by sharing strategies and technology. They give hope.

Attending a hearing loss convention is even better. It’s a world made just for the hard of hearing with live captioning, hearing loops and understanding people. Everyone repeats as needed and faces us. We find things to laugh about and learn from each other.